Successful learning opportunity starts with a dance and ends with a
song.
-By Tom Nerney
The third annual Immersion Learning has just concluded.
Center personnel have been consumed with preparation and joyfully exhausted
at the conclusion late last week. Returning to normal (or what passes
for normal here) will take a few days. However, we wanted to get some
basic information out to all members.
The Atlanta Immersion Learning had representatives from 32 states with
11 large planning groups, 8 smaller ones and many individuals who came
alone or with only one or two others. Four states sent more than 20 planning
members.
This was the largest by far of our immersion learning opportunities.
Every day had some highlights including the contributions from the Centers
for Medicare and Medicaid Services (CMS) a special very well received
panel on psychiatric disability and self-determination, self-advocacy
presentations, the Florida Freedom Initiative and an extraordinary speech
by the Governor of Georgia, Sonny Perdue.
The Georgia Governor's Council on Developmental Disabilities provided
unparalleled leadership to make this so successful. Their invitation to
the Governor resulted in one of the highlights of this learning opportunity
and we have included the full text here so that everyone can read this
important political declaration.
Georgia Governor Sonny Perdue's Extraordinary Speech Before the 3rd
Annual Immersion Learning
(Sponsored by the Center for Self-Determination and Co-Hosted by the
Georgia Developmental Disabilities Council)
Good afternoon. It is my pleasure to welcome you to the 2004 National
Immersion Learning about Self-Determination Conference.
I understand we have representatives here from 24 states today. Welcome
to Georgia!
We're very happy to host this conference, because we've got a lot
of work to do here in Georgia regarding self-determination for people
with disabilities and their families.
I know many of you come from states that are further along than Georgia
in this area. You come with good ideas, best practices, and the advantage
of experience.
And I expect my Georgia team to have their writing pads out and take
good notes!
We are looking forward to a good exchange of ideas.
The purpose of self-determination is to help individuals with disabilities
live lives more rich in relationships and community.
And to share with all our citizens the opportunity to work and contribute
as equal members of the society.
In short, it's about empowering people and erasing the boundaries
that hold people back from their full potential.
And to say that in even less words
it's about freedom.
And you can't get more basic than that.
Let's look at it this way
this is going to sound like a
detour, but it's not.
In America, the most fundamental purpose of government is to protect
and expand human freedom.
Isn't that what this country is supposed to be about? It's right there
in the Declaration of Independence: "life, liberty and the pursuit
of happiness."
That's what we all want. That's what we all have a right to, as Americans.
As human beings, created equal.
Our local, state and federal governments do a lot of things.
But scratch down to the core and the business they ought to be about
first
and foremost
is protecting and expanding our freedom.
Our life, liberty and pursuit of happiness. That's the promise the
American people made to ourselves in 1776.
And you could look at the unfolding of our history since then as a
long process of fulfilling that promise.
For some groups in our society, redeeming that promise has come slowly,
and painfully.
At different points in time, America may have thought the work was
done, only to realize we've had blinders on and there is more work to
do, and more promises to keep.
I certainly believe that has been true for Americans with disabilities.
But we continue to try and take those blinders off and keep that promise
.and
what we're doing this week is part of it.
A couple of weeks ago I spoke at the Little White House in Warm Springs,
commemorating the life of President Franklin Roosevelt. As you know, Georgia
was a second home for FDR.
After he was stricken with polio in his late 30s, long before he was
President, Roosevelt came to Warm Springs seeking relief.
This was in an era when society really did have it's blinders on when
it came to people with disabilities.
But I was reminded of Roosevelt's story again as I prepared to come
here today and speak about self-determination.
That was something Roosevelt enjoyed, uncommon for his era
..and
even for many people in ours.
In Roosevelt's case, it was due to his personal resources
.and
his personal determination not to be sidelined by disability.
But he had all those things we talk about empowering our disabled
citizens with: Roosevelt had the freedom to design his own life. He had
the funds to get whatever assistance was necessary. He had the control
to design his own care. He could arrange the support structures he needed.
He was certainly able to be a contributing member of the community.
Now FDR was an exceptional case in many ways, obviously.
But his story illustrates the value of self-determination for individuals
and
for the greater good of the community.
Is there a Franklin Roosevelt of more modest means out there now,
who will fulfill his or her full potential through your work?
Maybe. Maybe not. We don't know.
But we do know there are thousands of Georgians and millions of Americans
with disabilities who can enjoy greater fulfillment and pursuit of happiness
..
And who will be helped to do that as this principle of self-determination
takes root in our approach to serving their needs.
To be self-determined people need some pretty basic things: A place
to call home. A chance to learn. A way to generate income through a job.
Access to transportation. Basic things most of us take for granted
.the
things that give us options in life.
I have a vision in which people with disabilities are engaged as full
participants in all our communities.
To reach that point, many people require the publicly funded system
of services and supports.
But we should design that system always keeping in mind the fundamental
mission of expanding freedom.
We should seek a system of services that supports independent living
and increased quality of life.
Our system should provide individuals of all ages - and their families
- with the ability to make meaningful, informed choices about the services
they receive.
Those services should meet standards of quality and accountability.
They should be cost-effective - and consistent with the individual's values
and preferences.
Georgia is committed to self-determination for people with disabilities
and their families.
And while we're not as far along as some of your home states, we've
been moving forward.
The Georgia Self-Determination Team has been conducting self-determination
training across the state.
And the Governor's Council on Developmental Disabilities has brought
national experts to Georgia to meet with key leaders in the advocacy movement
and state agencies to discuss establishing self-determination
Also, last year I directed our Department of Community Health and
the Department of Human Resources to work with the Governor's Council
on Developmental Disabilities to develop a self-determination pilot project
that is scheduled to launch this fall.
Among other features, it will empower individuals and families to
make decisions about how resources are used to provide support.
It's a baby step in some ways
.but one result has been getting
the two primary state departments that serve people with disabilities
working together like never before.
And.to ensure accountability to those we serve
...we're ensuring
that people with disabilities are at the decision-making table, working
with policymakers to make self-determination a reality.
The blinders are coming off.
So I thank you again for coming to Georgia to discuss this important
subject.
You're helping keep that promise of freedom for people with disabilities
.
You're empowering people, erasing boundaries
.and you're
pointing the way to a more fulfilling life, greater liberty, and a true
pursuit of happiness for all our citizens.
That's not a bad way to spend the week!
Sharing of Outcomes
- By Pat Carver
This is a reminder to all teams to please send me a copy of your plans
developed in Atlanta. We want to share as much information as absolutely
possible so that as many people who are on line and are interested in
self-determination may benefit from the Immersion Learning. Efforts are
being made to get this info to those not on-line. Please do what you can
to share this enormous wealth of knowledge.
Send plans to: Pat Carver pcarver@chartermi.net
Additionally, Vickie Vining will be following up with team facilitators
later this month to coordinate your feedback and share strategies.
As lead Center Planning Consultant, Vickie Vining developed the following
invaluable documents.
§ Overview of Critical Elements
§ Independent Plus Planning Grid
§ Critical Elements of a Self-Determined Life,
§ Critical Elements Graphic
§ Purpose of the Human Service System graphic
§ Vision graphic
§ Planning Action forms
Vickie's presentation on the critical elements of self-determination
will be posted our website soon. We'll let you know through the FREEDOM
listserv.
State Contacts
Several new state contacts were identified at the Immersion Learning.
As the Center web site state pages add valuable information and grow because
of your commitment to alliance for freedom, I will be giving more time
to monitoring the input and making sure all members of the Center -alliance
for freedom - will be kept abreast of important aspects developing across
the land concerning self-determination. Please remember to share with
me any information you find relevant to the movement of self-determination
so that we may, in turn, inform you.
This Land was Made for You and Me!!!
Thanks to the wonderful talent and singing voice of Merle Tant, the Immersion
Learning ended on a hopeful and appreciative note. Mr. Tant is a member
of the Georgia Self-Determination team.
The Self-Determination Team is a group of self-advocates from all around
the State of Georgia who are working to change the system so that people
with disabilities have real choice and control over their own lives. The
Institute on Human Development and Disability at the University of Georgia
supports the members of the Self-Determination team to develop their knowledge
of self-determination and advocacy.
The skit developed and presented by this team at the Immersion Learning
offered directions to those in the audience who will need to facilitate
change on their Boards, committees and in their organizations. Their performance
highlighted actions that are necessary in order to truly support self-advocates
in decisions and policy making. It also reminded us all about who needs
to be in the forefront of this monumental movement about freedom!!!
As part of the team that coordinated this event, I am so appreciative
of the wonderful support and help from the fine folks from Georgia. Support
came daily from the Embassy Suite staff (who said we were such a fun group)
to the Governor Sonny Perdue; we all recognize that this could not have
been done without the leadership and dedication to self-determination
from Eric Jacobsen and Beth Spinning.
Closing Quote:
"No duds in the bunch." -- anonymous statement retrieved
from the third annual Immersion Learning about Self-Determination Suggestions
& Comments forms basket.
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