November, 2004 Volume 1, Issue 13

In This Issue


Feature Stories
Self-Determination
State Sites

Update and
Announcements

Closing Quote

Principles of
Self-Determination

Freedom
to live a meaningful life in the community

Authority
over dollars needed for support

Support
to organize resources in ways that are life enhancing and meaningful

Responsibility
for the wise use of public dollars

Confirmation
of the important leadership that self-advocates must hold in a newly designed system


Editors

Pat Carver

Tom Nerney

Center for
Self-Determination
401 E. Stadium Blvd.
Ann Arbor, MI 48104


www.self-determination.com

Kathy Homan webmaster


NEW RULES, NEW TOOLS

Why the best of the past is not good enough for the Future
Imagine how different a young person's life might be if he or she entered adulthood with disposal, financial resources and a savings account for the future. Economic self-sufficiency and transition services that support self-determination can increase hope and a sense of ownership and mastery over one's life and future. Please join in developing a blueprint for changing the face of youth transition services to one that incorporates the elements of self-determination with incentives for private income generation and savings for young people with disabilities together with real jobs and or self-employment. Registration deadline has been extended and individuals are no longer required to join a team to register! Visit
http://www.e-epg.info/conferences

The Self-Determination Transition Imperative

This first draft of the "Self-Determination Transition Imperative" can be found at http://www.self-determination.com/publications/ DRAFT-THESELF-DETERMINATIONTRANSITIONIMPERATIVE.htm The Center offers this link in order to solicit your feedback on language and concepts and suggestions for using this imperative (enhanced with your help). Its purpose is to galvanize a grass roots movement to fundamentally change how we approach transition in this country. Please respond both on the Freedom list serve or send your comments directly to tomnerney@earthlink.com

Self-Determination State Sites

Connecticut

A Father’s Point of View - I Know There’s Quality When . . .
Following Tom Nerney’s presentation on a new approach to quality at the AAMR regional meeting in Mystic last month, Quincy Abbot put his reactions on paper. Abbot has been President and Interim Executive Director of The Arc of the United States. Within Connecticut, he chaired the Governor’s Council on Mental Retardation for six years, was the founding President of the Corporation for Independent Living and of the Corporation for Supported Employment, and has been on the Board of Directors of Arc/CT for over 20 years. He co-chairs the Connecticut Olmstead Coalition and is a member of the Steering Committees for both the Nursing Home Transition Grant and the Real Choice Grant. As a long time and tireless advocate for all individuals with disabilities, read how he captures in exquisite detail important dimensions of quality that are so important to all of us in the self-determination movement.
http://www.self-determination.com/pdf/iknowquality.pdf

Michigan

- Money, Dreaming and Self-Determination
On November 10, the Ottawa County Michigan Regional Interagency Coordinating Council sponsored "Dare to Dream" a conference designed to assist young adults look at their future. Approximately 75 participants between the age of 18 and 26 learned about self-determination and how a partnership with their local funding agency can support their dreams. This age has been coined by the education industry as “transition.” Why is it that typical kids in this age bracket are “growing up” but those receiving special education are “transitioning”? For more information about this successful event, contact Pat Carver at
pcarver@chartermi.net See more on transition in this month’s lead articles.

- Hoyle Heads State ARC
After three decades in Ann Arbor, Dohn Hoyle is heading to the state capital to take the reigns of the ARC of Michigan. Known for his relentless and keen advocacy, Hoyle will continue to work closely with Michigan movers and shakers by being directly in their midst. Dohn is the treasurer of the Center for Self-Determination.

Montana

- New State Contact
Marsha Katz joins the Center as state contact for Montana. Currently, Katz is Project Director for Rural Entrepreneurship & Self Employment Expansion Design Project (RESEED). Marsha has worked in disability rights for 25 years and is an experienced trainer in all aspects of Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Her interests include alternatives to guardianship, disability law and policy, persons with cognitive disabilities in the criminal justice system, parents with disabilities, and fetal alcohol syndrome/fetal alcohol effects. Marsha helps to coordinate media relations for ADAPT actions and other events. Her life and work are guided by two quotes: "An educator in a situation of inequality is either an oppressor or a liberator" and "None of us are free unless we are all free." Contact Marsh Katz at
ADAPTMT@aol.com

Nevada

- Blazing the Trail!
Guaranteeing the Promise of Freedom through Redefining Quality and Creative Individual Budgeting with Center Resource Guides Mary Bryant, Michael Allen and Vickie Vining will be presented at 2004 TASH Conference Blazing the Trail! in Reno, Nevada November 21. The TASH TECH presenters bring new voices to the disability rights movement -- family members and individuals who have utilized this planning tool. The Saturday session was chosen in recognition that most family members work regular Monday – Friday jobs and cannot always take weekdays to attend conferences.
http://www.tash.org/2004reno/

New Mexico

- RESEED Workshop
A series of five workshops on self-employment are scheduled for 2005 year in Socorro, New Mexico. Marsha Katz from the Rural Entrepreneurship and Self Employment (RESEED) Project will conduct the workshops for individuals with disabilities, their families, community employment agencies (partners), Socorro School District personnel, and all interested individuals.
http://www.self-determination.com/states/newmexico/index.html

Updates and Announcements

Visions and Realities in Australia

Center members Jim Conroy and Glenna Taylor will present about self-determination this week at the 39th National Conference of the Australasian Society for the Study of Intellectual Disability "Visions and Realities." The Society is an organization whose goals are to promote research and understanding of intellectual disability; bring together people who are have an interest in the field of intellectual disability and promote high standards of work practice. http://assid.org.au. The conference is being held in Adelaide, South Australia.

Midwest Immersion Learning Revisited

The concept of Immersion Learning has been powerful and successful. However, focus on multiple states and planning teams raises ongoing logistical difficulties. Many different goals come to the table with diverse issues. Because of the variety of experience and understanding of self-determination, we have realized that it is very difficult to give everyone the contemplation or time necessary.

At this point, the Center has decided to focus on one state at a time and sometimes regions. We anticipate it will be the best use of our expertise and limited resources. However, the Midwest section of the United States has much to offer the rest of the country and each other about self-determination and we would like to capture their knowledge and experience.

Therefore, discussion is underway to offer a regionally focused learning event with the 2005 TASH Annual conference next November in Milwaukee. See for http://www.tash.org information. The July 2005 Center event is cancelled.

Results in from NDSC

In a recent letter to the Center Resource Guides who conducted The Promise of Freedom 2004 National Down Syndrome Congress pre-conference full day workshop, President Judy Martz writes "thank you for your commitment to families." Three quarters of the attendees were parents who reported that during the session the following was most helpful and important:

  • Sincere and concrete answers to questions asked by attendees
  • All the presentations had practical information
  • Great booklet developed by the Center
  • It’s never too early to start planning
  • The idea of creative use of available resources and looking outside of prepackaged options
  • Lots of good information

Attendees completing the evaluation said they would attend this pre-session again next year! Visit the NDSC website at http://www.ndsccenter.org

Center Resource Guide Receives ARC US Award

Jan Lampman, convener of the Michigan Academy on Self-Determination, Center Resource Guide and Executive Director of the Arc of Midland Michigan has been selected for the 2004 Outstanding Professional Achievement Award by the National Conference of Executives of the Arc. This award is presented to individuals whose leadership has resulted in significant improvement in supports and service for people with disabilities and their families. Jan will receive her award at the national Arc's annual convention in Boston, Massachusetts on November 18-20, 2004. To learn more about the Arc of Midland visit http://www.thearcofmidland.org

Closing Quote

"Self-Determination. Be Reasonable. Do it my way."
- seen printed on a post-it note on the desk of leading self-advocate in Holland, Michigan.